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Child in the hospital.


dale560
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1 minute ago, vtfireman85 said:

Prayers for all of you dale, you seem to have your hands full 25 hours a day. Good wishes for your daughter and some for you too. 

You just trudge ahead 1 foot ahead of the other. Hopefully they are able to get a plan and do procedure quickly. One thing I figured out about life is there is a good lord looking out for you sometimes and you just got to wake up in the morning and do something. This health problem won’t go away for my daughter but the can make her feel better for a while. We were planning on doing the pancreas removal cell transplant on youngest son this summer now I am sure we will be planning for daughter also, but like I said keep looking forward and up.

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10 minutes ago, dale560 said:

They did the endoscopic procedure today cleaned out ducts in pancreas and some of liver. Placed a couple stints that will remove themselves. Doctor that does this was amazed that the stones that were blocking moved themselves the last day

That sounds like great news Dale. 

Hope it is the start of better times for your daughter. 

Also hope the snow holds off and allows you safe travels home.

Will she be able to control the stones and blockages with diet or medication? 

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16 minutes ago, sandhiller said:

That sounds like great news Dale. 

Hope it is the start of better times for your daughter. 

Also hope the snow holds off and allows you safe travels home.

Will she be able to control the stones and blockages with diet or medication? 

They want us to do the genetic test to see if she has the gene or genes for hereditary pancreas disease. They would consider a pancreas removal islet cell transplant in that case a  lot can be controlled by lifestyle no Greasy foods, limited sugars and absolutely no alcohol and certain medications set it off. Basically a diet of boiled chicken and bread dough through life. 

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5 minutes ago, dale560 said:

They want us to do the genetic test to see if she has the gene or genes for hereditary pancreas disease. They would consider a pancreas removal islet cell transplant in that case a  lot can be controlled by lifestyle no Greasy foods, limited sugars and absolutely no alcohol and certain medications set it off. Basically a diet of boiled chicken and bread dough through life. 

Dale, you are learning a lot of things a father should not have to learn. 

I pray the Lord steps in and gives you and your daughter some relief. 

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7 minutes ago, dale560 said:

They want us to do the genetic test to see if she has the gene or genes for hereditary pancreas disease. They would consider a pancreas removal islet cell transplant in that case a  lot can be controlled by lifestyle no Greasy foods, limited sugars and absolutely no alcohol and certain medications set it off. Basically a diet of boiled chicken and bread dough through life. 

so glad on the removals, parental relief,  bummer on the diet, praying for healthy recovery and good news for the genetic test results

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I should add to the topic My daughter Abby has cerebral palsy. A mild case is the way to describe it. She is left side affected,they believe she had a in uterine stroke late in gestation. She Has some stiff movements with left side shows up in her walk. Stiff foot and ankle movements. She does well with that and never let it slow her down but she is taking this diagnosis a little harder just because she has watched her mother and brothers struggle with unbearable pain sometimes.

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