dale560 Posted December 9, 2021 Author Share Posted December 9, 2021 1 minute ago, vtfireman85 said: Prayers for all of you dale, you seem to have your hands full 25 hours a day. Good wishes for your daughter and some for you too. You just trudge ahead 1 foot ahead of the other. Hopefully they are able to get a plan and do procedure quickly. One thing I figured out about life is there is a good lord looking out for you sometimes and you just got to wake up in the morning and do something. This health problem won’t go away for my daughter but the can make her feel better for a while. We were planning on doing the pancreas removal cell transplant on youngest son this summer now I am sure we will be planning for daughter also, but like I said keep looking forward and up. Quote Link to comment Share on other sites More sharing options...
jeeper61 Posted December 9, 2021 Share Posted December 9, 2021 My prayers sent 🙏 Quote Link to comment Share on other sites More sharing options...
dale560 Posted December 9, 2021 Author Share Posted December 9, 2021 They left rugby ND at 6pm or a bit later flew to St Paul airport and are in hospital room at 830 around 520 miles by car I think. Wife informed me it is one door down from where our son stayed in his visit. 5 Quote Link to comment Share on other sites More sharing options...
searcyfarms Posted December 9, 2021 Share Posted December 9, 2021 hal a lou ya dale, so glad they are safe there and ready to get her feeling better!! be safe traveling when you head down there keep us posted on status please 2 Quote Link to comment Share on other sites More sharing options...
planejeff Posted December 9, 2021 Share Posted December 9, 2021 Prayers for her and your family. Get well soon! Quote Link to comment Share on other sites More sharing options...
ny bill o Posted December 9, 2021 Share Posted December 9, 2021 prayers. Quote Link to comment Share on other sites More sharing options...
Ihfarms Posted December 9, 2021 Share Posted December 9, 2021 Prayers from KY sir! Quote Link to comment Share on other sites More sharing options...
England806 Posted December 9, 2021 Share Posted December 9, 2021 Prayers for you and your family. wishing her a speedy recovery. Quote Link to comment Share on other sites More sharing options...
rrr4quality Posted December 9, 2021 Share Posted December 9, 2021 Prayers from Michigan! Quote Link to comment Share on other sites More sharing options...
Ihfan4life Posted December 9, 2021 Share Posted December 9, 2021 Dale, I haven’t followed the forum much since the unspeakable thing…. My thoughts and prayers to you and your family! Quote Link to comment Share on other sites More sharing options...
Rawleigh99 Posted December 9, 2021 Share Posted December 9, 2021 Prayers sent Dale!!! Quote Link to comment Share on other sites More sharing options...
dale560 Posted December 10, 2021 Author Share Posted December 10, 2021 The plan is to do the endoscopy procedure tomorrow. Then spring is out of here on Saturday if all goes well. 2 Quote Link to comment Share on other sites More sharing options...
Wes806 Posted December 10, 2021 Share Posted December 10, 2021 Thanks for the update. Will be keeping y'all in my prayers. Quote Link to comment Share on other sites More sharing options...
sandhiller Posted December 10, 2021 Share Posted December 10, 2021 Prayers your daughter gets the help she needs and it gives her much relief. Prayers also for strength for you and your family as well. Quote Link to comment Share on other sites More sharing options...
dale560 Posted December 11, 2021 Author Share Posted December 11, 2021 They did the endoscopic procedure today cleaned out ducts in pancreas and some of liver. Placed a couple stints that will remove themselves. Doctor that does this was amazed that the stones that were blocking moved themselves the last day 2 Quote Link to comment Share on other sites More sharing options...
dale560 Posted December 11, 2021 Author Share Posted December 11, 2021 Here is picture of the ducts and what was blocked . Ducts plug and bile , pancreatic fluids can’t move and irritate the pancreas, raise the liver enzymes and lipase amolyse numbers 1 Quote Link to comment Share on other sites More sharing options...
sandhiller Posted December 11, 2021 Share Posted December 11, 2021 10 minutes ago, dale560 said: They did the endoscopic procedure today cleaned out ducts in pancreas and some of liver. Placed a couple stints that will remove themselves. Doctor that does this was amazed that the stones that were blocking moved themselves the last day That sounds like great news Dale. Hope it is the start of better times for your daughter. Also hope the snow holds off and allows you safe travels home. Will she be able to control the stones and blockages with diet or medication? Quote Link to comment Share on other sites More sharing options...
dale560 Posted December 11, 2021 Author Share Posted December 11, 2021 16 minutes ago, sandhiller said: That sounds like great news Dale. Hope it is the start of better times for your daughter. Also hope the snow holds off and allows you safe travels home. Will she be able to control the stones and blockages with diet or medication? They want us to do the genetic test to see if she has the gene or genes for hereditary pancreas disease. They would consider a pancreas removal islet cell transplant in that case a lot can be controlled by lifestyle no Greasy foods, limited sugars and absolutely no alcohol and certain medications set it off. Basically a diet of boiled chicken and bread dough through life. Quote Link to comment Share on other sites More sharing options...
sandhiller Posted December 11, 2021 Share Posted December 11, 2021 5 minutes ago, dale560 said: They want us to do the genetic test to see if she has the gene or genes for hereditary pancreas disease. They would consider a pancreas removal islet cell transplant in that case a lot can be controlled by lifestyle no Greasy foods, limited sugars and absolutely no alcohol and certain medications set it off. Basically a diet of boiled chicken and bread dough through life. Dale, you are learning a lot of things a father should not have to learn. I pray the Lord steps in and gives you and your daughter some relief. Quote Link to comment Share on other sites More sharing options...
searcyfarms Posted December 11, 2021 Share Posted December 11, 2021 7 minutes ago, dale560 said: They want us to do the genetic test to see if she has the gene or genes for hereditary pancreas disease. They would consider a pancreas removal islet cell transplant in that case a lot can be controlled by lifestyle no Greasy foods, limited sugars and absolutely no alcohol and certain medications set it off. Basically a diet of boiled chicken and bread dough through life. so glad on the removals, parental relief, bummer on the diet, praying for healthy recovery and good news for the genetic test results 1 Quote Link to comment Share on other sites More sharing options...
VacDaddyt Posted December 11, 2021 Share Posted December 11, 2021 Great news. We have about ten inches here now, hopefully the weather clears for the trip back. Quote Link to comment Share on other sites More sharing options...
dale560 Posted December 11, 2021 Author Share Posted December 11, 2021 I should add to the topic My daughter Abby has cerebral palsy. A mild case is the way to describe it. She is left side affected,they believe she had a in uterine stroke late in gestation. She Has some stiff movements with left side shows up in her walk. Stiff foot and ankle movements. She does well with that and never let it slow her down but she is taking this diagnosis a little harder just because she has watched her mother and brothers struggle with unbearable pain sometimes. Quote Link to comment Share on other sites More sharing options...
oldscoutdiesel Posted December 11, 2021 Share Posted December 11, 2021 Prayers coming from Nebraska. Quote Link to comment Share on other sites More sharing options...
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