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Prostate cancer


SONNY
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Any of you guys had or have this chit???  I had surgery 4 weeks ago to have prostate removed. -- Problem is that the cancer had already spread. Now its wait and see where it goes to next.

I now run around the house in t-shirt and diapers! lol! NO bladder control at all.  Doc said 8 weeks to heal, but my white blood cell count is low, so he said it will take longer for me. Can't do anything, have walked the paint off the house floors! This aint me guys!! I gotta be outside working on stuff! LOL! -- I kinda have accepted the fact that IF I do something radical and damage the thing, it would not be good, so I just stay down.

You guys need to keep a close watch on your PSA numbers! -- They didn't catch mine in time and it spread!

All of you have Happy Holidays!!  thanks; sonny

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I SUPPOSE my Doc looks at my PSA but dunno for sure. I`ll ask him. 

It seems today it isn`t IF we develop some form of cancer but WHEN.

It has to very VERY scary and disheartening to get this news.

You just have to find some way to keep yourself occupied/sane until you heal.

Not an option. You HAVE to.

Just imagine what you would say to me/anyone or one of your family members if they were in your position.

It`s going to be OK. You just have to be very.......................................................................

.................................patient. 

Easier said than done, I know.

I`ll say a little prayer for you Sonny.

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21 minutes ago, MTO said:

I SUPPOSE my Doc looks at my PSA but dunno for sure. I`ll ask him. 

It seems today it isn`t IF we develop some form of cancer but WHEN.

It has to very VERY scary and disheartening to get this news.

You just have to find some way to keep yourself occupied/sane until you heal.

Not an option. You HAVE to.

Just imagine what you would say to me/anyone or one of your family members if they were in your position.

It`s going to be OK. You just have to be very.......................................................................

.................................patient. 

Easier said than done, I know.

I`ll say a little prayer for you Sonny.

It’s checked by a specific blood test. 

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had a co worker go thru it, his has spread also,  total removal of it and some lymph nodes, did all the chemo n radiation stuff and he did fine with it - been 2.5 yrs ago now and he was 56 at the time, they didnt catch his early either. Hes a smoker not sure that has anything to do with it but jsut fyi. he is doing good now, lost some weight thru it but it came back LOL. 

Be strong sonny, hang in there - will be praying for you and the recovery also

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My prayers !

hope you find a way to pass the time, you will get through it !

This prostate thing is tough , I go in every six months for PSA and digital exam.

pipes run slower & slower every year 

best to you

tony

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I had my prostate taken out in August 2004. 55yrs old, no symptoms, but had a physical and the PSA was a little elevated (though no baseline, since I hadn't had a physical in many years). Dr said recheck PSA , and in only a few weeks, it was higher. Doc sent me to specialist in Albany, biopsy was positive for cancer (2 of 14 samples- 28%). had to wait iirc 6 weeks after biopsy, for rectum to heal, before the surgery. when out, prostate was 40% cancerous and out to the sheath around prostate, so it was an aggressive form. lymph nodes came back negative. I had some problem with leakage for a bit, but after time, not much at all. usually, when the prostate is removed, you still have one of the 3 muscles left that control urine flow. (2 go with the prostate).

I would suggest a book by Dr Patrick Walsh "Surviving Prostate Cancer". it told me more than I wanted to know all at once, so I read it in installments. much good information. PM me if you want to talk.

having mine out in August was a challenge to stay inactive, for sure. I did a map of Red Power members while I was laid up. maybe you can do an updated one.

1605164396_mzmapus1.jpg.ec820e982c60a7839c7261a7900c6c1f.jpg

it has been 15 years now. I just had my annual trek to Albany on Wednesday, Dr Fisher said PSA this time was 0.12 (it has never gone to zero), and see you next year. life is good.

 

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On my last trip to the urologist, Doc said  I was past the age  for PST testing but he would do it if I wanted it. That area of your body is sensitive to being "messed with" and takes a long time to get back to some sort of normal.  Took many months to recover from bladder  biopsy, same with a prostate bio.  I was lucky everything came back quasi-normal.

Take it easy and let your body heal itself.  Now is a great opportunity to do computer related stuff.  I have an electronics work bench inside what would be the 3'rd bedroom.  Great spot for building small stuff and use a soldering  iron.  Also good area for sewing. Did you ever considering sewing?  I find sewing to be like anything else mechanical, believe it or not it is very similar  to welding without heat, and  your hands stay clean.  I really like the old Singer model 401A sewing machine  just, like my Aunt had in 1959, off ebay for $150.  I broke it and parts are available.  Great to make covers for the welder and battery charger or seat covers when ever you get up to it.  Or patch your clothes.  Just staying busy but out of harms way while you recover.

 

 

 

 

 

 

 

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Hang in there Sonny..........easy to say, but  that is the way of things.......My PSA count  was 6, in 2004...it is now   around 15........I was supposed to have that needle poked up where the sun never shines....but     chose not to.........I chew a zinc tablet daily........and have to lean forward to take a leak...otherwise  I would ......as OGB    said in a recent post....."".fill the boots......."

Doctor says more old blokes die   with it......than of it.......:mellow::rolleyes:

Mike

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Really good friend and coworker had his removed over a decade ago, he started out in adult briefs at first and attended a support group for awhile, there were some that had been in it for years. He taught himself to exercise with kegels and in short order he was back out of the diaper. He said coughing, sneezing and laughing was the hardest to control. I think his life has pretty much returned to normal, I don't recall him being off work for a long spell either.

I know when he first found out he struggled with it but then decided he wanted to live foremost and went straight ahead from there.

There are options for sex also.

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I had a friend have his removed. He isn't married so had to talk to someone. I became a good listener. Same type of recovery. Take it easy, follow doctor's orders. It's been a couple years he still gets the regular followup checkups but he's doing well otherwise. Like others said, find some non strenuous activities to take up your time.

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A friend had prostate cancer and had his prostate removed.  It had spread and the doc told him to get his affairs in order.  He sold off his equipment, house, etc and did a bunch of bucket list stuff and had fun with friends and family.  A few years later he bought a few pieces of equipment and started farming a little.  Over thirty years later he is still fine!  He is pushing 90 now and not farming but still helps his kids farm.  Good Luck.  Thx-Ace

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About 15  years ago at 48 my number was 6.6, I was always 1.7 prior. Went to specialist who gave me the finger job he said all felt fine, You might have an infection in there so take these pills for the next 30 days. Went back for a blood test 90 days later down to1.8. Scared the h3ll out of me. Sure don't want to be in denial with this cancer stuff. Good luck to all of you.

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Best of luck with recovery.

We went through a difficult diagnosis a few years ago, spending most of the winter months at Mayo Clinic.   In the process, we learned the importance of faith, family, and friendships. 

Continue taking care of those things still under your control. 

Your positive outlook will serve you well.

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The comment about most of us dying with it but not of it is my case. My PSA is and has always been very low, currently at 1.0. A digital exam resulted in a recommendation of a biopsy which revealed a very tiny bit which in turn generated yearly biopsies and quarterly PSA screenings. Well, it never moved, the PSA, never moved, and my new urologist has recommended six month PSA and biopsy ever three years. So I'm one (so far) of the lucky ones.

Having said that, my FIL was under the same watch and see protocol and his PSA suddenly spiked. A biopsy confirmed it and his treatment was directed radiation, relatively painless and very effective. No spread, PSA almost undetectable.

So guys, CHECK YOUR PSA! You have to be your own health advocate. Don't rely on your doc.

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A little extra info:

My first urologist was all for ripping my prostate out immediately. Well, a little research and a second opinion resulted in the watch it program. That was 10 years ago with no progression so be your own advocate. There are options for some that are less invasive or, in my case, minimally invasive, instead of removal. Removal if not done by the very experienced is pretty much the end of your sex life. That said, it's better than the end of your life.

 

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